Eight years old with a flour sack cape
Tied all around his neck
He climbed up on the garage
He's figurin’ what the heck
He screwed his courage up so tight
The whole thing come unwound
He got a runnin’ start and bless his heart
He headed for the ground
Well he’s one of those who knows that life
Is just a leap of faith
Spread your arms and hold you breath
And always trust your cape
Now he's all grown up with a flour sack cape
Tied all around his dream
He’s full of piss and vinegar
He’s bustin’ at the seams
He licked his finger and checked the wind
It’s gonna be do or die
He wasn’t scared of nothin’,
He was pretty sure he could fly
He’s one of those who knows that life
Is just a leap of faith
Spread your arms and hold you breath
And always trust your cape
Now he's old and grey with a flour sack cape
Tied all around his head
He’s still jumpin’ off the garage
And will be till he’s dead
All these years the people said
He’s actin’ like a kid
He did not know he could not fly
So he did
In a timely coincidence, I received this link yesterday on Joseph Campbell called Finding Joe - an introduction to not only the man behind the Power of Myth series, but also to what he calls the Hero's Journey. It's a powerful primer about this journey of ours discovering ourselves and what we're capable of through the meeting of adversity and challenges head on, face to face. Watching it last night reminded me of the distance I've traveled in the past almost 9 years of challenges to my health, its accompanying losses and also the gains. Little did I know I was also brushing up on my skills of survival that would be needed again soon -- kind of a review of what I've learned confronting my own personal dragons and finding my way through the dark jungle.
I had a cat scan last Thursday - a check-in with my annoying roommate, lymphoma, to make sure he's respecting the boundaries of the body we share. It was stressful for a number
of reasons beyond my control, but I rolled with it pretty well. I had
just read an article a couple days before about how being the angry
patient and expressing that to the staff usually ends up hurting the
patient. I kept my cool, did lots of meditating, counting breaths,
listening to music on my iPod -- and waiting while they worked out some
snafus. Hours later, two bottles of mocha-flavored contrast downed, one IV with more contrast and a run through the scanning tube and I was good to go.
Today I saw my oncologist for the results. He said the cancer came back in the kidney again - this time in both.
My
doc is incredibly good at what he does; he brings the art back into medicine. I look into his kind and gentle eyes
and give him my wholehearted trust in his care and skills. So yeah, if one is going to receive
crappy news, receiving it from someone I trust in a smooth and non-threatening way leaves me feeling safe surrendering into his very knowledgeable hands. The delivery of the news was cushioned by kindness and didn't even entirely register. In
the moment I had heard all of the information, but it took me until I
reached the parking lot later to realize I'd lost my remission, saying to
myself, "I guess it's a relapse," as I tried to digest the facts.
Am I good at dissociating or what?!
The
cat scan showed that lymphoma has returned to my kidneys again so we're going
to have to deal with that. We're starting with the lightest and easiest
of treatments - a single agent medicine that I've had before with other combo treatments. He wants
to experiment and see if the single med might knock it out. I go for
infusion 4 Mondays in a row starting next week, then we'll check and
take it from there. If it clears then he might want to put me on a
maintenance regime of once every 3 months. If it doesn't respond then we move onto trying other
things. He wants to protect my kidneys and get this out out before it
grows any more.
I'm not entirely surprised. The extreme tiredness I've
had the past few months has been reminding me of the time before the first boxing match with lymphoma. I'm not
surprised, but there's still some shock -- not exactly what I was
planning on for my summer. Oh well. Spend a day in the cancer center and
you start to feel damn lucky! -- especially when you see the young people
who are dealing with cancer!
So that's my news. I'm about to go do some planting and digging in the dirt now. I call it therapy - and grounding -- and also a reminder about maintaining my mental garden and the beauty before me, the beauty behind me, the beauty above me, below me and all around me as I walk forward on the Beautiful Trail - even with its speed bumps that slow me down.
Let go of the way you thought life would unfold;
the holding of plans or dreams or expectations - - Let it all go.
Save your strength to swim with the tide.
The choice to fight what is here before you now
will only result in struggle, fear and desperate attempts to flee
from the very energy you long for. Let it go.
Let it all go and flow with the grace
that washes through your days
whether you receive it gently
or with all your quills raised to defend against invaders.
Take this on faith: The mind may never find
the explanations that it seeks,
but you will move forward nonetheless.
Let go, and the wave's crest
will carry you to unknown shores,
beyond your wildest dreams or destinations.
Let it all go and find the place of rest
and peace, and certain
transformation.
One hundred years ago, on April 20, 1914, the
National Guard opened fire with machine guns on an encampment of
striking miners and their families. Two dozen, mostly women and
children, were murdered in southern Colorado by an alliance of business
and government attempting to union bust. This came to be known as the
Ludlow Massacre - a piece of history of union organizing. My grandfather
was there with his family, including my 3 year old dad. They all
survived. He quit mining, the only work he'd known since the age of 6 -
and became the cemetery gravedigger - still digging in the earth, but
for a much more hospitable employer: the deceased.
Thankfully, this is some of the survivor stock I come from. Big
gratitude for those tough survivor genes - and gratitude for all those
who have sacrificed for all of our basic human rights in the workplace.
In her New Orleans neighborhood, artist and TED Fellow Candy Chang
turned an abandoned house into a giant chalkboard asking a
fill-in-the-blank question: “Before I die I want to ___.” Her neighbors'
answers -- surprising, poignant, funny -- became an unexpected mirror
for the community. (What's your answer?)
I had the pleasure of hearing her speak yesterday about her art and her life, which are one in the same. Check her out -- and fill in your own ending to that sentence.
Amazing, horrific, awesome, severe balancing of nature - which this shows is not in the least bit warm and fuzzy, but more brutal.
The music accompanying this footage adds even more contrast - emphasizing how reality is far stranger than fiction and making me question how different is having too many people from having too many ants - and how will we be brought into balance?
Nature is mighty bizarre sometimes. This would be one of those times.
"But these attacks do have a positive effect on the jungle's diversity, since parasites like these stop any one group of animal getting the upper hand. The more numerous a species becomes the more likely it will be attacked by its nemesis - a cordyceps fungus."
Over the weekend I caught the movie 'The Sessions'. It offers up some insights into
living with disability, but the scope of the movie is small - mostly
covering one year of a 49 yr life through the lens of sexuality. Still,
it's a lens worth looking through to humanize the face of the disabled.
The movie was only the first breadcrumb on my trail to discover Mark
O'Brien - the man behind the story - poet, journalist and disability
activist. Disabled by polio at age 6, he lived under his parents care
until he was 27, next moving to a nursing home for two years. He escaped
that horror to bravely venture into the big, grand world of adult
independence and enrolled at Berkley, graduating in journalism. He was
also a poet, stating: "Poetry and journalism have more in common than
either would like to admit. They both have to tell the truth."
He wrote by poking painstakingly slow at a keyboard with a stick in his
mouth as he lay inside an iron lung machine - the contraption that gave
him breath and sustained his life.
Mark O'Brien on writing: "I'm living and I imagine it's for some
reason. I have my work. I write. I don't have writer's block ever. I
have all this stuff I want to write. And I can only write an hour or two
a day. There's never enough time to write."
In digging up information on him, I came upon this link to the '96
documentary on him that won an Oscar for best short documentary -
'Breathing Lessons'. It's short - 36 minutes -- and waaaay better than
The Sessions. The latter is the "watered down for the mainstream," mass
appeal, feel-good, semi-romantic comedy. Breathing Lessons is the real
deal - multi-layered, complex, complicated -- like a human being is.
The sexual surrogacy story of 'The Sessions' being just one small chapter of a remarkable
life of a writer confined and limited - in body only.
If you take the time to watch this you'll only be enriched. Consider it leavening for the writer in you.
"Everybody becomes disabled.... unless you die first." - Mark O'Brien